23/6/09
Rang Carol Doolan the Disability
Manager, she is now back from holidays but not in her office, I left
my numbers. She
rang me at 2.50pm, she said that she and Peter Byrne did not have a
meeting about my family, she said they had attended a normal weekly
meeting and she brought my name up to Peter afterwards. I asked for a
meeting, I am given Monday 29th
at 10am.
Eldest asks have I heard anything back from the HSE about funding for his
education yet as he wants to be a Barrister. I told him that I have a
meeting on Monday and will talk to Gheel Autism Services about it to.
I ring
Peter Byrne at Gheel, tell him I have had talk with eldest re “what
he would like” and he wants an education but I have exhausted all
avenues myself and need their input now. He tells me to talk to
Martin about it as this was the same as talking to him. I tell him
that I see Martin to vent, Peter says “it's the same thing” I do
not know what the hell this place is about, I did not bother going
back to Martin, he has as much social skills as my son. What is
needed is practical help, advice, supports and services so where the hell are they.
29/6/09
I meet Carol Doolan Disability
Manager Dublin North HSE she introduces me to a woman called Teresa who
deals with Five years and younger with Autism. My son is now 17, I have been roaring for help and supports since 2006. I ask Carol has she
read the HSE file from Sligo, I am told no but there is a very large
file on the table between us, I give Carol my copy of Dr Shah's
report and immediate recommendations, she leaves the room to get it copied.
Teresa is left talking to me, tells me I do not have to worry as she
has worked with many families before who are dysfunctional. That stunned me and I had no fast reply for her as I normally would have
done. Carol returns, she tells me she will talk to Peter Byrne of
Gheel and see what is needed regards the file, but eldest needs to
be on Dublin's database before anything can be done, I tell her he is
on Sligo database, she tells me it's not as simple as that, I remind
her that I have been told this for two months now so why is my son
not already on this database and what happens when he turns 18,
the meeting is ended, Carol tells me that anything I need just call
her or go through Gheel, I ask what happens now as I have been in
this situation since 2006 and am tired, weary and very stressed, she
tells me we can talk later or I can talk to Gheel myself.
I am asked is it an HSE diagnosis as if this changes my son's diagnosed Aspergers Syndrome and other problems, the fool. It clearly states on the report that Sligo
HSE asked Dr Shah to diagnose and report and I was told at the time "at great expense to the HSE".
Waste of money in my personal view as fuck all has been done about it and I was told by Irish Autism Action at the time that what this expert recommended HAD to be implemented.
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